It's not like I'm going to die, right?
No one has ever died from waiting have they? Just checking...cause I feel like I may be dying, not sure though, could be the crawling out of my skin feeling, or the fact that I want to throw a chair out my front window! Stick a fork in me cause I am DONE! Done waiting, done being patient. Seriously? Another weekend without knowing what is happening to my kids?
Maybe today wouldn't have started out so rough had I not checked my email to find out that a friend who has a child with SDS and Mito was just told last night that her son has Myelodysplasia but because of the Mito cannot go to transplant! Never in my life have I used the word 'unfair' but today, I think I will. It's unfair that this single mother, whose husband has passed away, now watches her only child struggle with bone marrow failure, mito, and a heart condition along with failing eyesight. He is 15 years old, and it's unfair.
Maybe today wouldn't have started out so rough had I not checked my email to find out that a friend who has a child with SDS and Mito was just told last night that her son has Myelodysplasia but because of the Mito cannot go to transplant! Never in my life have I used the word 'unfair' but today, I think I will. It's unfair that this single mother, whose husband has passed away, now watches her only child struggle with bone marrow failure, mito, and a heart condition along with failing eyesight. He is 15 years old, and it's unfair.
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