Last night, I wasn't sure we were going to make it. By the time they started round two of the cleanse, they were horribly sick and incredibly weak. The last dose was at 9pm and they spent until 1:30am vomiting and diarrhea. It was unbelievable. I had decided to have the boys sleep in my bed so they would be closer to a bathroom and Shelbie slept on a mattress on the floor. I laid on the couch, jumping up and down assisting them. I finally fell asleep at 2am and woke up at 3:10. Wide awake.
We arrived at 6 am.
The kids were in really good spirits and they wore the craziest outfits just to keep the moment humorous. The boys shared a room and Shelbie was next door.
We don't really have any results. The boys' scopes looked pretty amazing and very normal but he took several biopsies in hopes that it would hold the key to Spencer's malabsorption. It could be that the problem is in the liver, pancreas or small bowel. None of those areas can be viewed in a scope. Once the GI doc gets all the reports, Spencer will likely do the pill cam so they can get a look in his small bowel...well, unless the blood work shows something. All of that should be back tomorrow or Wednesday.
Shelbie, on the other hand, had all sorts of GI problems. She has pretty significant gastritis which could actually be H-pylori and some other unidentified growths that will be determined by pathology.
Shelbie came back to the room wide awake and incredibly agitated and in pain. They had to give her three doses of morphine before the pain was controlled. Tonight, she seems to be doing better.
Spencer has done the worst of the three. He looks like a wreck. Pale, weak and just skin and bones.
Bone marrow results will take another couple of weeks.
All in all...things went fairly well. I am so glad it's over.
Here are some highlights in photos from today.
|Sam...with his goofy 'man bun'|
|Sam post op|
|Spencer post op|
|Shelbie post op|