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Showing posts from August, 2012

For what purpose?

You've heard it said that people come into your life for a reason.  Everything is as it should be in this moment.  Some are here to help us, to frustrate us, to teach us.  They offer special things that we need in order to learn and progress.  Do you believe in this concept?  I do.  Sometimes though, I wish I didn't.  I mean, it can be a little unnerving don't you think?

When we were in Canada a few weeks ago, we stopped on our way home to visit my two grandmothers who are both in nursing homes.  They suffer from dementia and they have lived for nearly an entire Century!  When I saw them in March, they didn't even know who I was.  It made me so sad.  My Grandma Pratt just sat there with a blank look on her face, so confused.  This time, I figured it would be more of the same confusion.  It wasn't. 

We entered her room and she was sitting in the corner and looked up and said, "Kathy, I knew you would come this morning."  She had been in her exercise class…

The can of worms

Well, I hate worms, especially cans of worms.  We tend to deal with alot of cans of worms around here.  Here we go, opening another one...the throat.   Spencer's stinkin' throat.  It's been the ongoing saga for, oh, I don't know, since he was born!!

Today, I have big throat problems AND a very angry young man to deal with.  We went in for his allergy shots this morning to the Ear Nose Throat Doctor and first of all, they bumped us from seeing our regular doctor to the PA.  I like the PA but he has never seen the kids and it's just so annoying to start all over with the history and hope he 'gets its' which, new guys usually don't until we have seen them a few times.  I was a big bugged with the change because our usual doc has been taking care of this issue for over a year now. 

So, anyways, we mention the fact that Spencer feels like he has a lump in his throat and a fullness that sometimes makes it hard to breathe.  We mention the lack of gag reflex t…

Oh ya...

I have a tendancy to forget a lot of things after they happen.  I don't think I use to be like that I but I really have a short memory span.  Maybe that Alzheimer's gene is kicking in a little sooner than anticipated. (No really, all three kids have it so I must have it too.)

 The summer has really been not too bad as far as the kids health goes.  Not great but they have been able to get lots of sleep and take things easy.   We've had good days and bad but really more good from what I can remember without going back to read my journal.  So, today was the first day of school.  I was expecting just another summer day but no such luck. 

Two extremely tired and sick boys fell into the house after school.  Spencer is not really one to complain, he goes about his business no matter how he feels but at dinner he said, "Mom, I seriously don't think I can go to school and work too.  I feel sick by lunch so I try to eat something which makes me sicker.  So sick, I feel lik…

Keeping up

It's been hard lately to keep up with all the writing I am doing.  I write for 4 blogs, 5 Facebook pages and 6-8 articles a day.  By the time I take care of the kids, the house, the dog, the this and the that, I am all out of words.  Not really. 

We have been on the go since our vacation in Canada a few weeks ago.  The kids too have been non stop working and playing.  It finally caught up to everyone today! 

Shelbie woke up with a bad cold and felt pretty crummy all day.  Tonight, after sleeping a lot today, she has perked up.   Spencer is still having issues with the same throat problem, nausea and a list of other things.  So, even though I haven't been posting regularly, we are still at it, fighting one thing or another.  I know the stomach flu is going around so I have been pretty crazy lately, insisting on hand washing, cloroxing my house, shopping carts and everything else. 

We finally got our insurance worked out for Shelbie to start her IV iron and that will start on…

Amazing Human Body

When you think about it, our bodies are amazing!  The things we do to it!  What it has to go through and everyday, it just keeps on keeping on.  I look at my own kids and I am surprised at all the things they can still do.  I look at friends I know, and what they can do, some with only one lung, or only 14% lung funtion.  Some are riddled with cancer but you would never know it.  Somehow, the body just adapts and keeps on going.

It's perplexing to me that my kids are functioning quite well on bone marrow that is only producing about 20%  of the cells it should be when all of their friends are producing 100% yet they still keep up and remain active. 

Samuel is on the go all day.  He's my kid who just can't stay put yet he has no iron stores in his body.  I don't know how he can be so physical even when his blood is so low but he does.  Since he isn't showing signs of struggle right now to keep up, he will start a prescription of iron but Shelbie, who is in the sam…

IVIG and Dysautonomia

Yesterday was a rough day for Shelbie's transfusion.  Of course it was hard to find a vein.  It's sad to see these great nurse's feel bad for not getting it the first time.  She has the tiniest veins and as soon as get started, they disappear so that is a bit stressful.

Not even 10 minutes into the transfusion, she had a bad reaction.  They immediately stopped the IV.  She was having such a hard time breathing,  they ended up having to give her oxygen and a dose of steroids to calm things down.  It was almost as if she was having an allergic reaction but I really think it was due to her dysautonomia. 

After oxygen, steroids and Ativan, she was able to breathe a bit easier.  It took about an hour for things to settle down.  I would have to say that it was the scariest transfusion to date.  I usually don't get ruffled too much on transfusion day but I was really worried about the dramatic reaction. 

It confirmed to me that we really need to find a Neurologist that liv…

Exciting News

I got a call yesterday from Make A Wish.  They asked if they could feature Spencer in their 10th Anniversary publication and if he would be willing to attend a meet and greet for their annual fundraiser in Boise that's coming up! 

Serving Up Wishes is their big fundraiser on September 4th.  We attended it when Shelbie had her wish in 2007.  When you get to the fundraiser, you have the chance to buy 'funny money'.  All the different teams from Boise State are assigned to tables and serve you all night long.  You use the funny money to get them to do things for you.  The crazier the request, the better.  People were paying football players to take their kids on piggy back rides or they would be asked to get on stage and sing a song or act crazy.  We had the Boise State Football Team waiting on our table.  We paid them to cut up Sam's meat, feed Shelbie, dance with Shelbie and a bunch of other silly things.  Shelbie and the Quarterback actually got on stage and did an im…

Catching Up

The past month has not gone well, a little stressful to say the least but the worst is behind us with bone marrow biopsies out of the way, results and the other little annoyances we had to deal with. 

We were so blessed to be able to spend the last week in Canada visiting my family for my niece's wedding.  It was a week that was so needed, especially for the kids.  It felt like we could actually breathe without the weight of our world resting on our shoulders.  It's funny to me how getting away can help you see things more clearly.  When you have one set back after another, it's hard to see the big picture.  The days start blending together with a hazy film of fatigue clouding them up. 

The kids did pretty well while we were gone.  Other than fatigue and some of the usual things for Shelbie, she did so well.  The boys continued to have bouts of nausea, dizziness, weakness etc. 

One incident happened while we were shopping in a store and Spencer had to sit down on the fl…

Is this normal?

We have been in Canada for the past few days and today, I experienced the highlight of this trip.  I got to see the new Children's Hospital here in Calgary!  I know, of all the things to see in Calgary, I just really wanted to see the hospital. 

Today, we were on our way to Banff and I took a wrong turn and right there in front of us was the hospital!  I have never been so excited to make a wrong turn as I was today.  I love designing healthcare facilities and I have read tons of articles on this new hospital.  It has been featured in so many Healthcare magazines so seeing it in person was a real treat!  I only wish I could have gone in and been taken on a private tour.  That would have been such a dream!  I know, it's not normal to have this fascination with hospitals.  Oh well.






I'm sure some people think my fascination with hospitals is because of the kids' illness but it has more to do with my love of design and healthcare facilities.  Someday, I would love to des…