This and that

Well, even though the doctor had promised to call me Monday afternoon with mito results, I still haven't heard from her.  We did go to the hospital Monday for blood work and the platelets are coming down.  Monday her count was 100.  We will head back in tomorrow and I'm guessing they will be in the 20's or 30's and infusion will take place on Friday. 
     It's a little frustrating because I still haven't heard from our local doctor.  We were suppose to have been planning surgery and a long term plan of care but that is still in the air.  Hopefully I will be able to talk to him tomorrow or Thursday. 
     In the meantime, I have 3 sick kids.  Spencer has had bad back problems but this morning he woke up with a swollen jaw.  He wasn't hit, didn't bang it, none of his teeth hurt just this swollen, sore jaw.  He also has a sore throat and his very tired.  Samuel is struggling with who knows what- more nausea, fatigue, stomach pains.  I have tried to keep him loaded up on enzymes, nexium, zofran, gas x and any other things I think might help his discomfort.  All those remedies did get him through the school day today and he was able to eat dinner so that is better.  I am glad that we are scheduled to go to Boise next week to meet with our Gastrointerologist.  Hopefully, he will have some answers for Sam. It's almost reminiscent of Spencer's gall bladder attacks. 
     Shelbie is also sick with a really bad cold.  She sleeps all day and has a sore throat and low grade fever.  It's just viral so there isn't a lot I can do for her.  This seems to be part of the pattern.  She gets sick while the platelets are being destroyed, gets IVIG, gets better for two weeks, gets sick again, platelets gone....  It's just a vicious circle and it's getting old. 
    That's what's happening in our neck of the woods.  I should have lots to report on tomorrow and not just about bad stuff.  Looking for some really good news about a fundraising project so stay tuned!


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