Whaa hoooo!

So, Shelbie and I made our daily trip up to the hospital for bloodwork this morning.  Her platelets are at 158!  Awesome!!  We were so excited to see that number!  It was nice to feel the relief of a normal count.
Everyday, we have a little contest with the nurses to see who can come closest to guessing the platelet count. I have won twice this week.  I was only two away today and two away on Wednesday.  Do I know my kid or what?!
      On the downside though, her white count has dropped again to well below normal and her monocyte count is through the roof.  Neither one of those is a good thing but there is not much we can do.  In fixing one thing, we created a host of other problems.  As long as I can keep her virus and bacteria free, she should be okay.  It is promising to see such good counts one week after IVIG.  After speaking to the doc, he explained that the IVIG should stay in her system for 2-3 weeks.  After that time, it is likely that her counts will tank again and we will do another infusion, get sick for a week, have a week or two of feeling okay then do it all over again.  This is a chronic problem rather than an acute one which comes on fast and ends quickly. Of course this is just one scenario, the one we have been familiar all of her life.  It is always possible that God has something different in store for her like stable counts that last for months and no more IVIG for a long while.  It's nothing we can predict...

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