On and on

A strange thing happens when we go through stuff like we have in the past few weeks.  I seem to manage just fine as we go through the worst of the crisis.  It must be adrenaline that kicks in and keeps me going because as soon as the initial worry passes, I drop off like a fly in November. 
     Today has been the hardest to get through yet; since Shelbie's counts dropped two weeks ago.  I feel like a balloon that has been deflated.  At 6pm I was ready to call it a night.  I don't often feel like this but it always happens after we get through something big.
     To update on Shelbie, her counts are still dropping in increments of 8000.  The IVIG has been in her system one week as of this Friday.  It is suppose to be effective for 2-3 weeks so it's too bad that we are already seeing the falling counts.  I have learned a lot about the auto immune process.  The biggest thing I have learned is that it is completely unpredictable.  No one can judge how long this is going to go on.  It could end as fast and as unexpected as it started.  It 's been really interesting to line up all her blood reports and chart out how the counts change with platelets, IVIG and nothing.  I think I am starting to see a pattern that might provide cues to what could happen in the future. 
      The hardest thing is waiting for the shoe to drop.  Of course we try to live a normal existence but it's hard always wondering what will happen next and when it will happen.  I have tried to get her to plan one thing to do each day so she has a purpose to get up in the morning but it's really important that she doesn't overexert herself and that's hard to find the balancing point.  We are still trying to get that right.
      

Comments

  1. We are praying for your family! We love Shelbie, will you tell her for us? Let me know if you need anything. Cynthia Browneller

    P.S. I found your blog on a comment you left on Sullenger's blog. I have relied on it for updates on Shelbir.

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