Skip to main content

Happy Moments Roll

Today has been a day of creation.  I have realized that we can't just assume the happy moments are going to happen on their own.  Not when we are waiting for life changing news.  We can sit around and get discouraged with the fact that we are worried and tired and losing our ever loving minds, or we can create our own happy moments.

So...that is what we have attempted to do.  It's not to say some angst and nail biting moments of spine tingling grief didn't have its place as well.  I had plenty of work to do and a big presentation so while I worked my fingers to the bone, the kids went into town to try out the Popeye's chicken and show Little Bear Hobby Lobby.  Spencer kept me updated with his hilarious commentary of the day on Snapchat.   He's a good sport to accompany three girls to a craft store! (Shelbie took her friend).  Poor Sam missed out on all the fun since he was in school.

This evening, we said goodbye to Spencer, had a good cry in my favorite crying spot, my closet, then decided to hit up the roller rink.   Shelbie, sadly, had other FHE plans at her friend's apartment.  Sam and Little Bear and I went.  I seriously considered bowing out because I haven't roller skated in 40 years and I'm old and every joint in my body is currently swollen and inflamed.  But...tonight was about creating fun so I put my big girl skates on and away we went.

Sam goes skating a lot.  I would say he has successfully channeled his inner 70's nerd when he is out there.  He's the hot shot skating backwards, crossing his legs, weaving in and out.   I was not a hot shot but I could hold my own at least.  I have to say, I sort of had a good time.  It was fun to watch Sam.

All in all...we survived today.  A day without any news to speak of.  Even our local oncologist didn't bother to call even though they have had the referral since Thursday.  In contrast, I made one phone call and sent one email and received a reply within a couple of hours.  I called our team of researchers at the National Institute of Health in Bethesda.  Due to the storm out there, only two people made it to work in the Hematology department.  He took my message and sent an email to the person I needed.  He thought her email at home might have been down so I didn't hear back but at least contact was made and the man was as helpful as he could be.

The email I sent was to our favorite Dr. Shimamura whom we saw at Seattle Children's but moved last Fall to Boston Children's.  I didn't have any of her contact information but the Boston Children's website has an option to send an email attachment right from the website.  Within 2 hours, Dr. S emailed me back.  All she said in return, to my explanation of what we were facing, was, "I"m so sorry! Can you please send me your number so I can talk to you in person?"I'm hoping she has some insight for us and guidance in case we are dealing with cancer.   DC kids can not usually tolerate the typical chemo drugs.  They have to have a reduced intensity to protect their other fragile organs.

It bugs me that a local doctor can't get back to me in three business days but a world renowned Hematologist who is head of Hematology at a major medical institution can get back to me in less than two hours.

Anyways, that is where we are at with things.  Still in limbo but the happy moments roll by and we hold on to those for as long as we can.  i'm in the last few days of my 29 gifts project.  I will post the updates on that tomorrow.  The one gift I have been waiting 25 days to do is happening tomorrow!   Stay tuned.



Popular posts from this blog

Things that can't be counted.

Albert Einstein said, "Not everything that can be counted counts and not everything that counts can be counted."

You count the hours in a day, the days in a month, the months in a year. You can count calories, your money, your chickens, even before they hatch!   But what does all that accounting count for?

We count and manage the things that we can measure, the tangible things of life.  We tally the score and size someone up according to the numbers.  To count anything other than the concrete things we can see and measure, seems a lot like herding chickens.  We can say, "I love you THIS much!" and spread our arms out but what is that?  How much is 'this'?  Intangible things are often immeasurable, fleeting, circumstantial, seemingly small; a moment of joy here, a little bit of love there.  By not measuring the abstract, we remain in a state of survival, just getting by, fitting in to the numbers game.

I recently heard about the country of Bhutan and what I …

That boy!

Sam loves to think he is invincible.  He loves to push the limits physically.

Tuesday morning, I decided to gently tell him his heart is showing increased signs of struggle and he should take a little more caution in how far he pushes himself.  I tried to balance the reality with what I know he can handle emotionally.

Well, he got mad.   "I've had a heart problem forever, it's not just going to quit now, the week before a pacemaker!"

"Even hearts have an expiration date.  God doesn't want us to do dumb things to create more trouble than is necessary.  Just tone it down, that's all." was my reply.

He left for work right after, mad.  He slammed the front door and was gone.

About 2 hours later, he came back through the door with a bruised face and the skin off his nose with blood all over.

"What happened??!!"
"I'm not telling you!"
"hmmmm, you did something crazy to prove a point that you can do whatever you want."


Standing Amazed

I should break this up into a couple of posts rather than one long one...but here we go!

Friday was Spencer's birthday!  23 years for this son of mine.  He couldn't come home from Utah until Saturday so we celebrated then.  

Back in May, we stumbled upon this little cafe in a neighboring small town.  With our food, we each got entered in a drawing for a chopper motorcycle.  The ticket Spencer got was his birthdate and the drawing for the bike was the day after his birthday so he was sure it was a sign he would win the bike.  He has held on to that ticket all these months.  Part of his birthday request was to go back for the drawing and pick up his bike!

So we did!  Holy Cow...that little restaurant had transformed into a biker bar!!  It was hilarious and embarrassing.  We have had some friends visiting from Colorado and they were with us.  I really had no idea what the event would be like but clearly, not a wholesome family experience  but it was still kind of fun to see all …