Skip to main content

Patience is a virtue

Patience is a virtue but only to a point.  I try, I really try to be patient but it's the kind of energy you can only keep up for so long and then you...well...you snap!

Today proved to be that moment where my threshold for patience was met.

Sam's test results are sitting the desk of not one, but two doctors; the Cardiologist and the Pulmonologist.  The Pulmonologist has decided to take another week off from work without anyone covering for him so, we won't get results from him til sometime next week.  The Cardiologist who read the tests, won't tell me the results because technically, Sam isn't his patient and he felt the doctor who ordered the test should discuss the options, not him.  I explained the whole situation to several nurses today but they too, were lacking patience and understanding.

I called back to the lab and asked if they would fax me the results.  Nope.  Not going to happen through that avenue either.

So, I got this great idea to call our family doc and have him request the records.  I was really hopeful that would work but I got stuck trying to get through the Berlin Wall of secretaries who think they know what they are talking about but don't.

At first, I just asked to speak to a nurse because I know all the nurses personally.  She wouldn't send me back and insisted on a message.  I insisted it was really confusing but she insisted I tell her.  So, I did.

Just as I thought, she was confused.  Then she started explaining to me that a radiologist reads ultrasounds not cardiologists...

Three times, I tried to explain to her that in this case, it was the actual Cardiologist who will do Sam's surgery if it turns out he needs it, who read the echo studies.  She kept telling me I was confused.

So, in an effort to be patient and not lose my temper.  I just kindly asked her to have a nurse or doctor call me and admitted defeat and stupidity.  What do I know?

I find it so unfair for a doctor to put the fear of death in you by saying that he's 98% sure your kid needs surgery and before the end of the year so he's still around and confirm that he is having mini strokes and then leave for two weeks without anyone covering your patients.   I'm certain he's enjoying his vacation while I am trying so hard to make the best of things and be patient and keep Sam occupied so his mind doesn't wander into the worst case scenarios.  It's really hard!  I try to stay in the moment but I have caught myself wandering into the nethermost reaches of 'What if', several times today.

I almost feel like medicine is nothing more than another big box retailer and human emotions are a thing of the past; something vintage, to be treasured if you ever stumble upon a doctor who truly cares.  Pretty soon, I'm going to be telling my kids stories that begin...I remember when you were little, we had a doctor who actually called me to see how you were doing.

No lie, I got a call while I was at work this morning from a doctor who did blood work on Shelbie December 1.  They were just calling to give me the results that were only suppose to take 24 hours to get.  I had totally forgotten all about that visit and when he said how ridiculously long ago that was,  I just laughed and said, "Really, we are already on to the next big thing.  It's a little late, we already figured that problem out."  Sheesh.

The saving grace for today was that we have some awesome company visiting and new friends.  They have been such a breath of fresh air and the kids have seemed to really enjoy each other.  If it wasn't for them, today would have been that much harder.

Tomorrow, I am thinking of driving down to the lab and requesting a copy of the testing myself.  I'm not so sure they can deny me since I am the mother and I am the one footing the bill for this.  We'll see how I feel in the morning.  It's not that hard to read a test report and if Sam does in fact need surgery then I can at least get on the books with the Cardiologist and spare us another week of waiting.  

How foolish for me to think this could be done by the end of the year!



Photobucket

Comments

Popular posts from this blog

Some Results

I was surprised to get a brief update from our doctor this morning.

They did not catch any seizure activity last week.  She said that while that may be good news, it didn't rule out deep structure seizures.   I asked if the test gave any insight to the cause of the slowing of activity in her brain and these were her words.

" No, this does not give an answer ... But it is just one test, done one time ..."

We are still waiting on the MRI results.  I'm not losing hope.  I know, I play this game ALL THE TIME...I wish for problems that no one in their right mind would wish for.  I only do that because it's usually the option with a fix.  Of all the things they are considering to be an issue for Shelbie, seizures are the simplest explanation and medication would manage it.

I'm certain we aren't going to find a solution to her problems any time soon.  While I sat in the waiting room during her 2 hour MRI last Thursday, there was a couple in the room as well.  A…

Random Saturday

Whenever I feel like we are careening out of control, I declutter and clean.  By midnight on Friday, I had 1/3 of my living room filled with stuff I didn't want.  Today, I made a couple of trips to the thrift store and the dump.

Ahhh, I feel like I lost 20 pounds.

When Sam came home after his first week at school a while back, he said, "Wow, my room looks the same."

"What did you think your room would look like?"  I asked.

"Clean."

Turkey!  He came home this morning with his laundry and was a bit despaired.  He said, "Mom, you gotta help me with the smell in my apartment!  I can't stand it anymore! Do we have any Ozium?"

He went on to explain that there is no garbage disposal in the kitchen sink but food gets crammed down there anyways.  He said he keeps putting the little metal drains in that are meant to catch bits of food but his roommates take them out.  He's about fed up.  And while he was on his rant about boys and their leve…

A Witness

I was expecting just another run of the mill night at the gym last night.  The kind where the 'meat heads' stay at their end of the gym grunting and groaning to sound strong and I would claim a little corner in the room where the Yogi's hang out and Plank, and there I would Spin on a bike for a few miles, do some rowing, a little TRX and finish up with some free weights.

Last night though, I actually decided to do an easier workout and took an inclined walk on the treadmill.  There were no meat heads in far end of the gym.  No one really at the gym at all.  For the longest time, I kept pace with an old guy on a bike behind me.

But then, a man and his son came in.  I knew them.  I knew them well but they don't know just how well I know them.  They have a son who passed away from Cystic Fibrosis a little while ago, he would have been Spencer's age now.  They have a younger son who also has CF.  I knew his wife and mother in law back when my kids were being diagnosed.…