Skip to main content

Not so fast...

Well, this afternoon, we go to see about all of Shelbie's pending tests from the Pulmonologist.  I'm pretty nervous about this appointment.  I no longer trust my gut here...I thought Sam's was going to be no big deal...I have no idea what to expect with Shelbie.  I just hope whatever it is, we can handle the news!

But...just when I thought this week was just about focusing on Shelbie...I got a call late Monday night from our Cardiologist.  He got some labs back on Sam and he is concerned about his Renal numbers and the fact that he had blood in his urine, significant amounts and the wacky liver numbers.  So...now he has to have a CT Scan!  What next?  It just never ends.

I told Sam and he actually started laughing..."Oh geez...what are they going to find wrong with me now!!"  It's not funny but we are at that point when it's just become so ridiculous what we are going through that all we can do is laugh.  I feel like a rag doll being used as a chew toy for a Labrador Retriever; just being tossed around for some awesome game of fetch!  I guess as long as we get a good bounce out of it!!

Despite the ongoing drama, we had a fun night on Monday for FHE.  We went to the arcade at the movie theater and played a bunch of games.  Shelbie and Sam are incredible at these dumb games. They won nearly 3000 tickets!!!  When we had used up our allotted budget and cashed in our handful of tickets, they gave the ticket stub of all these points to family who didn't make very many.  The kids were so excited but not nearly as happy as the way my kids felt when they saw these other kids so excited!  It was a good night!  We all laughed and enjoyed each other.

When we got home, the kids played Monopoly while I watched.  I hate that game but I don't mind watching.  I actually had to correct some of Sam's homework and finish up my diaper project.
Sam and Shelbie are so good at this game, a lady watching them win asked Sam to play for her so she could get as many tickets!  She went and bought a handful of tokens and begged Sam to win for her!  Sadly, he only won 25 tickets for her!

1000 ticket!

There was no end to the fun tonight!




Photobucket

Comments

Popular posts from this blog

Some Results

I was surprised to get a brief update from our doctor this morning.

They did not catch any seizure activity last week.  She said that while that may be good news, it didn't rule out deep structure seizures.   I asked if the test gave any insight to the cause of the slowing of activity in her brain and these were her words.

" No, this does not give an answer ... But it is just one test, done one time ..."

We are still waiting on the MRI results.  I'm not losing hope.  I know, I play this game ALL THE TIME...I wish for problems that no one in their right mind would wish for.  I only do that because it's usually the option with a fix.  Of all the things they are considering to be an issue for Shelbie, seizures are the simplest explanation and medication would manage it.

I'm certain we aren't going to find a solution to her problems any time soon.  While I sat in the waiting room during her 2 hour MRI last Thursday, there was a couple in the room as well.  A…

Random Saturday

Whenever I feel like we are careening out of control, I declutter and clean.  By midnight on Friday, I had 1/3 of my living room filled with stuff I didn't want.  Today, I made a couple of trips to the thrift store and the dump.

Ahhh, I feel like I lost 20 pounds.

When Sam came home after his first week at school a while back, he said, "Wow, my room looks the same."

"What did you think your room would look like?"  I asked.

"Clean."

Turkey!  He came home this morning with his laundry and was a bit despaired.  He said, "Mom, you gotta help me with the smell in my apartment!  I can't stand it anymore! Do we have any Ozium?"

He went on to explain that there is no garbage disposal in the kitchen sink but food gets crammed down there anyways.  He said he keeps putting the little metal drains in that are meant to catch bits of food but his roommates take them out.  He's about fed up.  And while he was on his rant about boys and their leve…

A Witness

I was expecting just another run of the mill night at the gym last night.  The kind where the 'meat heads' stay at their end of the gym grunting and groaning to sound strong and I would claim a little corner in the room where the Yogi's hang out and Plank, and there I would Spin on a bike for a few miles, do some rowing, a little TRX and finish up with some free weights.

Last night though, I actually decided to do an easier workout and took an inclined walk on the treadmill.  There were no meat heads in far end of the gym.  No one really at the gym at all.  For the longest time, I kept pace with an old guy on a bike behind me.

But then, a man and his son came in.  I knew them.  I knew them well but they don't know just how well I know them.  They have a son who passed away from Cystic Fibrosis a little while ago, he would have been Spencer's age now.  They have a younger son who also has CF.  I knew his wife and mother in law back when my kids were being diagnosed.…