Land of the free...home of the brave
Yes, America is the land of the free and I think I just realized what the part about the 'home of the brave' means. Brave is what you have to be when the insurance company says you can't have the one and only treatment that will make you better. Welcome to America and the crippled healthcare system.
We got results of the CT Scans today and Shelbie has a severe virus and as long as she has no working immune system, she will have this virus. The doctor said that the longer the virus hangs in there, the higher her risk for a bacterial infection or fungal infection so she is not out of the woods by a long shot. We are celebrating the fact that it is not a funal infection! We do have one other reason to celebrate...September 1, our insurance company changed their pre- auth policy on radiology.
Remember a couple of posts ago, I said I had a nagging feeling not to wait to take her to the doctors? Well turns out Wednesday was the last day to have radiology done without a prior preauthorization. Today, they would have had to pre-authorize the testing and what the doctor wanted was pretty extensive and not the usual, customary tests so most likely would not have been approved under the circumstances. So, despite today's setback, I am feeling pretty blessed.
Our team of doctors in Seattle and our team here, have been working together and it is agreed that the IVIG infusion is her best bet. The last one brought her a week and a half of relief but as soon as it left her system, the virus flared up. Technically, our insurance company said she can have it on the 12th of September but not until. Since I don't have $25,000 of spare change laying around, we will have no choice but to wait. Of course, there is always a chance that an act of God will change their minds and it's happened before so I guess we will try to be patient.
It's been really hard for me to remember that God doesn't give us any problem that doesn't have a reasonable solution even if that solution can not yet be seen. He has blessed me with these kids who all have special needs so he will also bless me with the means necessary to take care of them. I can't see how that is going to happen right now but judging what God can and can't do is pointless and will get us nowhere. The doctors keep telling me that a virus has a life span and eventually it will die off on it's own. That's great but I can't help but wonder how long 'eventually' really is. It's obviously longer than two months.
We got results of the CT Scans today and Shelbie has a severe virus and as long as she has no working immune system, she will have this virus. The doctor said that the longer the virus hangs in there, the higher her risk for a bacterial infection or fungal infection so she is not out of the woods by a long shot. We are celebrating the fact that it is not a funal infection! We do have one other reason to celebrate...September 1, our insurance company changed their pre- auth policy on radiology.
Remember a couple of posts ago, I said I had a nagging feeling not to wait to take her to the doctors? Well turns out Wednesday was the last day to have radiology done without a prior preauthorization. Today, they would have had to pre-authorize the testing and what the doctor wanted was pretty extensive and not the usual, customary tests so most likely would not have been approved under the circumstances. So, despite today's setback, I am feeling pretty blessed.
Our team of doctors in Seattle and our team here, have been working together and it is agreed that the IVIG infusion is her best bet. The last one brought her a week and a half of relief but as soon as it left her system, the virus flared up. Technically, our insurance company said she can have it on the 12th of September but not until. Since I don't have $25,000 of spare change laying around, we will have no choice but to wait. Of course, there is always a chance that an act of God will change their minds and it's happened before so I guess we will try to be patient.
It's been really hard for me to remember that God doesn't give us any problem that doesn't have a reasonable solution even if that solution can not yet be seen. He has blessed me with these kids who all have special needs so he will also bless me with the means necessary to take care of them. I can't see how that is going to happen right now but judging what God can and can't do is pointless and will get us nowhere. The doctors keep telling me that a virus has a life span and eventually it will die off on it's own. That's great but I can't help but wonder how long 'eventually' really is. It's obviously longer than two months.
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