What next?

Thankfully I survived the weekend!  I had three more episodes with my heart; not as severe but definitely uncomfortable.  I went back to the hospital at noon to get the monitor off and back to respiratory therapy.  They claim that they will have it read by the cardiologist tomorrow but I'm not going to hold my breath.  I don't think many people are working this week or will at least have limited hours.

The more I think about it all, the more I wonder if it doesn't have something to do with the phlebitis I have been dealing with since September.  Late this afternoon, my ankle started acting up and it was so painful to walk, again!! Now the pain is all the way up my leg and so uncomfortable.  I guess I'm just falling apart!  I wish someone could figure out all these strange things happening to me.  I guess it could all be stress but that is such a hard diagnosis to wrap my head around.

Saturday night, I got a whopping 1.5 hours of sleep!  Bentley, the dog tore open a gift that was under the tree and it happened to be a 2 lb box of chocolates.  He ate the entire thing in the less than 10 minutes! Bentley is a little shi tzu so that can be a pretty serious thing.  Let's just say, he was sicker than a dog all through the night.  I was letting him out about every 15 minutes for about 4 hours straight and when he wasn't outside, he was pacing the floor whining!  By about 4am, I was so angry with him!  I didn't care if he survived death by chocolate or not!

He survived.  Today he is hyper and rotten to the core.  Needless to say, my patience is frayed and he's getting on my last nerve!

This week...I am hoping we get this genetic testing underway!  It seems like important things always happen around a holiday and everything gets delayed.  The longer we wait to start testing, the longer it will be before we get answers.

I pretty much have my mind made up of what disease we will be dealing with and that makes this whole process even worse because honestly, it is worse than SDS.  The suspense is hard.

In the meantime, there will be no shortage of appointments this week.  Sam has to see an Ophthalmologist tomorrow.  He continues to lose his vision and it is happening more frequently.  Shelbie will get her knees taped and hip work done and sometime in between it all, they will celebrate Christmas and try to relax with their dad.

Looking forward to talking to Spencer on Wednesday.  That is pretty much the only thing keeping me going at this point!  I miss that boy so much!



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