Sleeping, breathing, eating and more
Spencer wins the award for the most specialists seen in one day! The first week in November, he will be going through a battery of tests starting with the Sleep specialists, then the Pulmonologist. After a couple of hours there, we will be moving onto the Neurologist, the Ear Nose Throat doc and finally wrap it up with the Gastroenterologist. He will be admitted for some testing but we aren't exactly sure yet what that will be.
I am really grateful to Dr. Thompson, our Gastroenterologist for co-ordinating all this and getting things submitted and approved by the insurance company. Our Oncologist is also getting on board so we can keep everyone in the loop. It may seem like overkill but this is the stuff that dreams are made of. My dreams at least, maybe a lot of Shwachman Diamond Syndrome mom's dreams. To have that many people looking at my child over the course of 2-3 days and then meeting together to discuss a plan of attack is just incredible. I'm worried it won't actually happen.
Here's the funny thing about the Neurologist. The new guy we will be seeing use to practice just 30 minutes from our house. Because of politics at the hospital he was working in, he left and moved to Boise so now we will see him there. I have been told he has great credentials and a superior education but the Rate My Doctor scores are low, lower than I would like to see. I am keeping an open mind. If we like him, he will be our back up Neurologist when we can't get to Seattle.
They wanted Spencer to get started on the 31st of October but that is Halloween and the day we return from Spencer's wish so that is out of the question. Some big news is coming about his Wish. It's really exciting, almost surreal.
I am really grateful to Dr. Thompson, our Gastroenterologist for co-ordinating all this and getting things submitted and approved by the insurance company. Our Oncologist is also getting on board so we can keep everyone in the loop. It may seem like overkill but this is the stuff that dreams are made of. My dreams at least, maybe a lot of Shwachman Diamond Syndrome mom's dreams. To have that many people looking at my child over the course of 2-3 days and then meeting together to discuss a plan of attack is just incredible. I'm worried it won't actually happen.
Here's the funny thing about the Neurologist. The new guy we will be seeing use to practice just 30 minutes from our house. Because of politics at the hospital he was working in, he left and moved to Boise so now we will see him there. I have been told he has great credentials and a superior education but the Rate My Doctor scores are low, lower than I would like to see. I am keeping an open mind. If we like him, he will be our back up Neurologist when we can't get to Seattle.
They wanted Spencer to get started on the 31st of October but that is Halloween and the day we return from Spencer's wish so that is out of the question. Some big news is coming about his Wish. It's really exciting, almost surreal.
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