A moment of peace

It is amazing the night and day difference that IVIG makes for Shelbie.  Once she gets passed the awful side effects, she does much better.  Of course she is still really tired and feels run down but the colds and viruses are essentially gone. 

Unfortunately, it only stays in her system for about 21 days.  We are coming up on the 21 days so it will be interesting to see what she comes down with next.  Her B-Cells have still not returned which to me is neither good nor bad. 

Here's why.  As soon has her B Cells return that signals her immune system to rev up.  That revved up immune system begins destroying her platelets and we start the whole nightmare of Immune Thrombocytopenia Purpura all over again.  Our doctors have already made it clear that they will not approve any other treatment besides the chemo agent Rituxan so she gets signed up for another two months of that.  Her immune system will die, the platelets will come back and so will all the viruses and bacterias.  IVIG will continue until the B-Cells regroup...and the vicious cycle continues. 

But for now, I have enjoyed what it feels like to breathe, to get caught up on a few things during this time of reprieve. I try not to think ahead to the second week of the month when we have to do the hospital thing all over again.  I know it could always be worse so I really shouldn't complain.

In other news, it's that time of the year when the kids' need their bi-annual check ups with our GI doc in Boise.  Those appointments have been scheduled at St. Lukes and I am actually looking forward to seeing him.  The boys desperately need some help in the GI department.  They are sick and nauseated all day, everyday.  I really want them to be able to find some relief.

I have a little secret too but don't tell anyone...I got a call from Make A Wish!  They want to grant Spencer a wish!!!  I am so excited for him, I can hardly contain myself.  I will have to keep it hush, hush for a while longer until all the paper work gets completed and he has been assigned his Wish Granters.  I can't wait to see what he wishes for...I have no idea.  He is my mysterious child!  I will keep you posted.