Skip to main content

A tangled web

In keeping with the theme of our life, we find ourselves again in a bit of a mess.  We met with the surgeon bright and early this morning.  We went back and forth on all the possible diagnosis and we are still looking at gastric emptying disorder which means, his stomach, which is a muscle just doesn't contract and move food through which results in a lot of pain, cramping ,nausea and diarrhea which are all the symptoms we have been dealing with. 

Inflammation is still another possible problem, meaning ulcerative colitis or chrohns.  Then again, we could be dealing with irritable bowel syndrome but there is no real testing for that and most often the cause is an overreaction and sensitivity to gastric hormones.  To start the testing for any of them would be in the neighborhood of $5000.00 so he suggested we start the treatment he gives all his Crohns patients. 

We started a trial run of that this morning and will stay the course for two weeks.  If after two weeks we see no improvement then we start all the testing.  He is hopeful that this will do the trick.  I am still doubtful.  He said the effects should be fairly quick if it's going to work.  So far, today has been slightly better but he hasn't eaten since breakfast either so that explains that.

So, now for the tangled part.  As the surgeon reviewed the blood work from Monday, he noticed that Spencer's Calcium levels are super elevated...not good.  He said, "Wait a minute, we gotta run more testing to figure out what's going on, it's not good to let this go."  There is basically only one cause of hypercalcemia and that is a disorder of the parathyroid glands. 

Sheesh!! I hated to ask but I did anyway..."The parathyroid gland only gets hyper active when there is cancer present or a benign tumor right?"
"Right!" he said "And, interestingly enough, stomach pains and nausea, along with diarrhea and bone pain can be the prominent symptoms of hypercalcemia."

We had to go to the hospital late this afternoon for more testing.  We will find out next week if he will need surgery to explore the parathyroid glands and remove them.  What a mess!!

Thankfully, I had a day that was scheduled with meetings and jobs back to back.  I had about 10 min between cleaning a 6000 sq. ft. house and another job to run home and check on Shelbie then I was off and running again and now, at 9:00 just barely sat down so I haven't had much time to let my mind process everything. 

Now that I am mulling over all this news, it will be challenging to keep my head out of the worst case scenarios.  I just hope it can all be fixed. 
Photobucket

Comments

  1. I also hope it can all be fixed Kathy! Be strong.. I will be praying for you!

    ReplyDelete

Post a Comment

Popular posts from this blog

Post Trauma

This week is definitely one for the books and one I hope to never repeat.  You would think that after 12 years of being divorced, there would be little left to argue about and spend energy being contentious but it seems that is not the case.  We have a history of ups and downs and currently, we are in a downward turn and honestly, I don't see that we will ever enjoy the 'ups' again.  So, it's been sad and the most emotional taxing week!

The kids were suppose to be in Utah for a huge Independence Day Celebration with their dad and new step family.  It was to consist of Seven Peaks, Fireworks, and a Hunter Hayes concert.  All that changed so they were home and not too happy about the circumstances.

I had three broken and depressed kids on my hands so I knew I had to come up with something to soften the edges of this week.

Up in the Teton Valley is a hot air balloon festival every July 1st.  You don't see hot air balloons very often in our part of the world.  Back …

Untitled...

I have had a lot of time to think about what to title this post.  I'm still undecided.  Here are some options...

Testing...
This is just a test.
Full Circle
Redemption
The wonders of God
Missing pieces
Borrowed Time

Shelbie had her neurology appointment yesterday.  About a month ago, a nurse called to tell me our neurologist wanted to see Shelbie.  That has rarely happened, that a doctor calls me to see my kids, so there was no hesitation in my response.

We waited over an hour and a half for the doctor to get to our room.  We kept occupied with Snapchat filters, GIFs and stupid Memes.  Everything seemed funny but I had the worst gnawing feeling that all that was about to change.

The doctor came and in said, "So, how are you handling this latest development and do you have any questions about Epilepsy?"

She was talking a mile a minute and describing in detail how she arrived at this diagnosis.  "Any questions?"  She paused to ask.

I remembered one time, I was …

Blissful thinking

This has just been a week of stuff...lots of hard stuff so it only seemed fitting to finish things off with a trip to the dentist.  I hate the dentist.  I have always hated the dentist.  I will always hate the dentist.

I had to have a root canal.

I figured I could either be upset and cranky and whine and complain or try to make the best of it.

So...I tried to make the best of it.

I am not very good at taking care of myself and I'm especially not good at asking other people to help me take care of myself or take care of anything really so, when the dental assistants ask if I need anything, I always say, "I'm fine."

Not yesterday.  Nope. I am a tired and cranky woman, on Prednisone, with an abscess in my ear to boot!

Just before I left for the dentist, I dug through the sofa cushions to find some left over Valium.  I was really intent on making this a good experience! They say that attitude is everything!  It's not what happens to you, but how you choose to deal …