As usual
As usual, I spoke too soon about the side effects from this week's infusion. It seems the slower rate only prolonged the pressure and swelling in her head. It hit really late Friday night and lasted throughout Saturday and even today, she hasn't been feeling all that hot. Granted, we were able to avoid the ER but it was a nagging pain that was not to be relieved with anything!
I asked Shelbie what she thought about the longer hospital stay and she has concluded that she would rather do it over 6 hours and be slammed with a headache and get immediate relief at the ER than to drag on infusion day only to have a headache that doesn't get better with medication but isn't bad enough for the ER so it becomes something to endure for a lot longer.
I can see that but sadly, there is no perfect solution. As usual, she has broken out into huge hives that go from her hand to her neck all because of the IV. We are just learning all the effects dysautonomia has on her and anytime her skin is irritated, as in the case of getting an IV started, hives are the end result.
I am glad to have this week behind us. Now, we plan for 3 bone marrow biopsies. Incidently, our Oncologist's nurse called me this week to let me know our Oncologist in Seattle wanted to make appointments to see us. I just don't have it in me to make that trip; not financially, not emotionally so we will stick with our plan to do the biopsies right here at home...well, at the hospital.
I asked Shelbie what she thought about the longer hospital stay and she has concluded that she would rather do it over 6 hours and be slammed with a headache and get immediate relief at the ER than to drag on infusion day only to have a headache that doesn't get better with medication but isn't bad enough for the ER so it becomes something to endure for a lot longer.
I can see that but sadly, there is no perfect solution. As usual, she has broken out into huge hives that go from her hand to her neck all because of the IV. We are just learning all the effects dysautonomia has on her and anytime her skin is irritated, as in the case of getting an IV started, hives are the end result.
I am glad to have this week behind us. Now, we plan for 3 bone marrow biopsies. Incidently, our Oncologist's nurse called me this week to let me know our Oncologist in Seattle wanted to make appointments to see us. I just don't have it in me to make that trip; not financially, not emotionally so we will stick with our plan to do the biopsies right here at home...well, at the hospital.
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