Wishful Thinking
Two weeks ago, I started my injections in hopes of putting my Ankylosing Spondylitis into remission. The first injection was a piece of cake...it hurt a fair bit but no reactions or funky side effects. It felt like a win, actually! From past experiences with similar drugs, I thought I would be in for some crazy swelling and other reactions.
Week two, I had no reservations about giving myself the second injection. I didn't think it would be much different than week one. I missed the mark on that assumption. I was thoroughly miserable! Miserable!! I was so sick just a few hours later and the following day felt like I had influenza. I didn't but those are the written side effects. So, tonight, it's time for my third injection and I'm not excited! I'm thinking it may result in death or close to it...Probably not, but if it's incrementally worse, then I'm in trouble. This is why I generally have to be in serious trouble before I will take pharmaceuticals. They seem to create a dozen new problems.
And another thing...the first thing on the instructions says..."Don't take this drug if you are allergic to Secukinumab."
I have a couple of questions about this...how do you know if you are allergic to Secukin-watchamicallit...Is that something we should just know? Because I don't know that. And!! I'm a little concerned, that I don't know that information. It seems important. Seeing as how death can result if you are allergic, it seems like high stakes. It's like a game of Roulette I guess. So, going in to tonight's injection, I'm like...will I live or will I die...nobody knows. We'll know in the morning when someone comes looking for breakfast.
Also, who came up with that name? I suppose it's the scientific name because the commercial name is Cosentyx but that's a weird name too. I've spent more time than I'd like to admit trying to figure out what this name means...like trying to read someone's vanity plate on their car when all of the vowels are missing. I'd like to sit around the conference room coming up with drug names. I think the name should reflect more of what you can expect from the medication, not a name that means nothing.
For example...
In-F-ectu-al- It's pronounced ineffectual...this would mean, 'Don't expect to achieve relief from your disease.' So, I think that would be a good name for this drug.
Moribund- Just pronounce this the way it sounds. It means...'As I lay dying' because that's actually what it feels like for 12 to 18 hours after each dose.
Swind-EL- This isn't a bad option either because it robs you of what little health you had before treatment and after you pay for a month's dosing...you're basically too poor to pay for month two, but that's not all bad because if you're allergic to it, there won't be a month two. It's a win/win.
I really don't think this drug is going to help me. Honestly, I still curse trying to get out of bed in the morning, or take a deep breath...it's all pretty painful but maybe the crooked pharmaceutical companies think it helps because you forget how much pain your in, in lieu of vomiting for 12 hours instead. Maybe that's where they are coming from. I'm not sure.
At any rate, I haven't slept for roughly 37 months because of inflammation and an impingement in my shoulder, and since this shot is slow to work, I asked my doctor today for a cortisone shot. Apparently, since it wouldn't be going in the joint, but in the bicep tendon, the risk of rupturing that tendon is pretty high and would result in not being able to move my right arm and surgery would be required to reattach it. Since he put it that way, I opted to pretend the pain away. He suggested taking a month off from using it...that's an interesting option but I think I'll just pretend it doesn't hurt. I'll just pretend I didn't need to lift anything, raise my arm higher than my elbow...that should work out just fine.
It's been another award winning day! Whew! It's good. Lots of good stuff here.
Week two, I had no reservations about giving myself the second injection. I didn't think it would be much different than week one. I missed the mark on that assumption. I was thoroughly miserable! Miserable!! I was so sick just a few hours later and the following day felt like I had influenza. I didn't but those are the written side effects. So, tonight, it's time for my third injection and I'm not excited! I'm thinking it may result in death or close to it...Probably not, but if it's incrementally worse, then I'm in trouble. This is why I generally have to be in serious trouble before I will take pharmaceuticals. They seem to create a dozen new problems.
And another thing...the first thing on the instructions says..."Don't take this drug if you are allergic to Secukinumab."
I have a couple of questions about this...how do you know if you are allergic to Secukin-watchamicallit...Is that something we should just know? Because I don't know that. And!! I'm a little concerned, that I don't know that information. It seems important. Seeing as how death can result if you are allergic, it seems like high stakes. It's like a game of Roulette I guess. So, going in to tonight's injection, I'm like...will I live or will I die...nobody knows. We'll know in the morning when someone comes looking for breakfast.
Also, who came up with that name? I suppose it's the scientific name because the commercial name is Cosentyx but that's a weird name too. I've spent more time than I'd like to admit trying to figure out what this name means...like trying to read someone's vanity plate on their car when all of the vowels are missing. I'd like to sit around the conference room coming up with drug names. I think the name should reflect more of what you can expect from the medication, not a name that means nothing.
For example...
In-F-ectu-al- It's pronounced ineffectual...this would mean, 'Don't expect to achieve relief from your disease.' So, I think that would be a good name for this drug.
Moribund- Just pronounce this the way it sounds. It means...'As I lay dying' because that's actually what it feels like for 12 to 18 hours after each dose.
Swind-EL- This isn't a bad option either because it robs you of what little health you had before treatment and after you pay for a month's dosing...you're basically too poor to pay for month two, but that's not all bad because if you're allergic to it, there won't be a month two. It's a win/win.
I really don't think this drug is going to help me. Honestly, I still curse trying to get out of bed in the morning, or take a deep breath...it's all pretty painful but maybe the crooked pharmaceutical companies think it helps because you forget how much pain your in, in lieu of vomiting for 12 hours instead. Maybe that's where they are coming from. I'm not sure.
At any rate, I haven't slept for roughly 37 months because of inflammation and an impingement in my shoulder, and since this shot is slow to work, I asked my doctor today for a cortisone shot. Apparently, since it wouldn't be going in the joint, but in the bicep tendon, the risk of rupturing that tendon is pretty high and would result in not being able to move my right arm and surgery would be required to reattach it. Since he put it that way, I opted to pretend the pain away. He suggested taking a month off from using it...that's an interesting option but I think I'll just pretend it doesn't hurt. I'll just pretend I didn't need to lift anything, raise my arm higher than my elbow...that should work out just fine.
It's been another award winning day! Whew! It's good. Lots of good stuff here.
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