My heart

I haven't talked about Spencer in a while.  That would be because I haven't spoken to him in awhile...except I finally got a brief text from him tonight and they are in Scorpion Bay and yes, the name says it all.  My dear mamma heart has been hanging in there for three weeks with very little contact.  We are use to talking every day!  Oh, well, we are on the home stretch. 

He has been in Mexico for three weeks already and won't be home until Sunday!  He is filming an action movie for Deus surf boards and dirt bikes.  They have driven from LA down to the very Southern end of Baja, Mexico and stopped in every little run down town along the way.  I'm not exactly sure what the accommodations have been but I'm guessing he will fill me in on the details when I see him next.  His birthday is this week but we'll probably celebrate next week when we are back at the hospital...That's how we roll. 

It's been a bit of a disturbing weekend.  Friday night, I got the quarterly report on Sam's pacemaker.   He is monitored 24/7 and they report any abnormal findings.  When he received his pacemaker one year ago this month, it was pacing his heart between 40 and 50% of the time.  The past three months, he is pacing at 68% of the time.  With every 100 beats of his heart, 68 are being initiated by an electrical shock!  Ugh.  That's an unexpected drop in heart function in just a year.  I'm not sure what to think of that but I will definitely be asking about it next week when we see the cardiologist. 

Shelbie was doing okay but now she's not.  I have no clue what is going on...maybe seizures, low blood pressure, I'm just not sure.  Oddly enough, our Neuroimmunologist emailed me out of the blue today.  She was thinking about Shelbie and wanted to see how things were going. I haven't even responded, that will be an email that is going to take more than a couple of minutes. 

That's been the weekend pretty much. 

On Sunday our dear friends, the Hendricks' invited us to their son's cabin in Island Park.  We love it when they invite us to spend the day with them.  It is so peaceful eating dinner beside the lake and enjoying our favorite people.  

We met them 5 years ago at a hospital.  Shelbie was in cardic rehab and so was Neal.  I don't even know how we got to talking but we clicked and we have been friends ever since.  They only live 10 minutes from us.  They are, hands down, the kindest, sweetest people I have known.  They have taken us into their family and treated us like their own.  My kids have adopted them as their grandparents here.  We go for lunch together or take long drives into the mountains.  We can often be found in their backyard during the weeknights after work, sitting under the apple trees until the sun begins to set...and the Bats come out to play!!  I'm the laughing stock now, because I am terrified of bats and they have so many bats in their backyard!  As soon as it starts getting dark, they flit and fly all over and I basically army crawl to my car, screaming inside, and dying just a little! 

Anyways... it was such a welcome distraction on Sunday night to spend time with them, and some of their children and grandchildren.  

                                                    

Beautiful Henry's Lake

   We salvaged the weekend for the most part.  I'm trying not to worry about the condition of Sam's heart and Shelbie's seizures today.  It's pretty late and I wish I was in bed...asleep but I promised I wouldn't go to bed until she was asleep.  When she has a string of seizures, it can feel like she's having a stroke and that's pretty scary for her.   Here's hoping things are better tomorrow.