Skip to main content

The best

      Our trip to Utah this week was filled with family time.  I felt re-energize to see the kids enjoying each other's company.  

    We arrived a little early and Spencer was still in class so we wandered around the college taking pictures and texting them to him so when class was out, he had to come and find us according to the was amusing, a little family scavenger hunt.

     We went for an early dinner during Spencer's break.  When we came out, I wanted to get a nice picture of the kids.  Well, when it comes to pictures, my kids are the worst!  They will never be serious and all I get are dumb looks and ridiculous smiles.   Shelbie wanted everyone to stand on these concrete pillars but she needed the boys to help her get up on one and they weren't having it.

  I settled for this pose.

 It's been a long time since we have spent any time at University of Utah Hospital.  The last time we were there was about 16 years ago.  Sam had his first bone marrow biopsy and they refused to put him to sleep for it.  Shelbie had had one just before this that they refused to put her to sleep as well.  It was horrible so with Sam, this was the last straw for me and the last time I stepped foot in this hospital.   It was with mixed feelings I came back.

I love that even though these trips are stressful and difficult at best, the kids hang in there with each other and make the most of it.  I love to see how they support each other and show extra kindness.  The boys are so great with Shelbie.  I told her at one point that she is one lucky girl to have such handsome, sweet brothers who take such good care of her. These kids are the best part of my life.


  1. I hope this visit was better than the last. You have some truly fabulous kids, and they have a truly fabulous mom.


Post a Comment

Popular posts from this blog

Some Results

I was surprised to get a brief update from our doctor this morning.

They did not catch any seizure activity last week.  She said that while that may be good news, it didn't rule out deep structure seizures.   I asked if the test gave any insight to the cause of the slowing of activity in her brain and these were her words.

" No, this does not give an answer ... But it is just one test, done one time ..."

We are still waiting on the MRI results.  I'm not losing hope.  I know, I play this game ALL THE TIME...I wish for problems that no one in their right mind would wish for.  I only do that because it's usually the option with a fix.  Of all the things they are considering to be an issue for Shelbie, seizures are the simplest explanation and medication would manage it.

I'm certain we aren't going to find a solution to her problems any time soon.  While I sat in the waiting room during her 2 hour MRI last Thursday, there was a couple in the room as well.  A…

Random Saturday

Whenever I feel like we are careening out of control, I declutter and clean.  By midnight on Friday, I had 1/3 of my living room filled with stuff I didn't want.  Today, I made a couple of trips to the thrift store and the dump.

Ahhh, I feel like I lost 20 pounds.

When Sam came home after his first week at school a while back, he said, "Wow, my room looks the same."

"What did you think your room would look like?"  I asked.


Turkey!  He came home this morning with his laundry and was a bit despaired.  He said, "Mom, you gotta help me with the smell in my apartment!  I can't stand it anymore! Do we have any Ozium?"

He went on to explain that there is no garbage disposal in the kitchen sink but food gets crammed down there anyways.  He said he keeps putting the little metal drains in that are meant to catch bits of food but his roommates take them out.  He's about fed up.  And while he was on his rant about boys and their leve…

A Witness

I was expecting just another run of the mill night at the gym last night.  The kind where the 'meat heads' stay at their end of the gym grunting and groaning to sound strong and I would claim a little corner in the room where the Yogi's hang out and Plank, and there I would Spin on a bike for a few miles, do some rowing, a little TRX and finish up with some free weights.

Last night though, I actually decided to do an easier workout and took an inclined walk on the treadmill.  There were no meat heads in far end of the gym.  No one really at the gym at all.  For the longest time, I kept pace with an old guy on a bike behind me.

But then, a man and his son came in.  I knew them.  I knew them well but they don't know just how well I know them.  They have a son who passed away from Cystic Fibrosis a little while ago, he would have been Spencer's age now.  They have a younger son who also has CF.  I knew his wife and mother in law back when my kids were being diagnosed.…