Skip to main content

Cardiac MRI...again

Life is crazy busy.  I'm not even sure how I make it through each day but somehow we are keeping just above the current.

Last week, we had to make another trip to Utah for more cardiology testing on Shelbie.  Part of me really wanted to cancel because I'm just not certain that we are going to get any good information from this test on her.  I think our problems are more lung related but who knows...I might be surprised.
Waiting

My remote office for the day.  Nice enough.  


It was a very strange day at the hospital.  Same test Sam had a few months ago, yet it took twice as long and it was just completely different.

The nurse kept coming out to ask me the weirdest questions.  Like, the first time, she said, "Do you know if your daughter has pulmonic valve problems?"

"Yes. Why?"  I asked.
"No reason."  She said...

That's odd.  Doctor's really ask a question for no reason?
Then she came out again, "Does your daughter have shortness of breath?"
"Yes.  Why?"  I asked.
"No reason."  She said...

When she came out the third time, I kind of started laughing in anticipation of her next question without a reason.  This time, she said, "I just don't want you to worry, everything's fine.  Your daughter is doing great.  The cardiologist is going to get a larger scan of her lungs."

I was back in this private waiting area but there was one other lady there who then said, "Oh, your little girl is having testing done?"

"Yes, but she's not very little, she's nearly 23."
"Oh...the nurse made it sound like she was doing something really hard and just a little girl."

The whole day was weird!  It took the entire day!  We went straight home from there so I could get to my night job.

We won't get results for a week or two.  This week though, we see the Pulmonologist about the CT scans the kids had last week and to see if Sam's wheezing is doing better since being on steroid inhalers.

I guess the blessing lately is that I have been so consumed with other work and other details to figure out in life, I haven't even had time to think about what is happening to the kids.  Every now and then, the anxiety bubbles up to the surface but I get quickly distracted.  Honestly, the break from thinking has been kind of nice.  

I feel like Wednesday is going to put an end to this chapter of heart and lungs.  Not that we will have definite answers, or maybe we will but certainly not a plan to cure anything I'm sure.  I still like to think that everything is going to be fine but I've thought that before so it's better to keep my mind a blank slate and let whatever comes...write the story itself.  Easier said than done.

Photobucket

Comments

Popular posts from this blog

Some Results

I was surprised to get a brief update from our doctor this morning.

They did not catch any seizure activity last week.  She said that while that may be good news, it didn't rule out deep structure seizures.   I asked if the test gave any insight to the cause of the slowing of activity in her brain and these were her words.

" No, this does not give an answer ... But it is just one test, done one time ..."

We are still waiting on the MRI results.  I'm not losing hope.  I know, I play this game ALL THE TIME...I wish for problems that no one in their right mind would wish for.  I only do that because it's usually the option with a fix.  Of all the things they are considering to be an issue for Shelbie, seizures are the simplest explanation and medication would manage it.

I'm certain we aren't going to find a solution to her problems any time soon.  While I sat in the waiting room during her 2 hour MRI last Thursday, there was a couple in the room as well.  A…

Random Saturday

Whenever I feel like we are careening out of control, I declutter and clean.  By midnight on Friday, I had 1/3 of my living room filled with stuff I didn't want.  Today, I made a couple of trips to the thrift store and the dump.

Ahhh, I feel like I lost 20 pounds.

When Sam came home after his first week at school a while back, he said, "Wow, my room looks the same."

"What did you think your room would look like?"  I asked.

"Clean."

Turkey!  He came home this morning with his laundry and was a bit despaired.  He said, "Mom, you gotta help me with the smell in my apartment!  I can't stand it anymore! Do we have any Ozium?"

He went on to explain that there is no garbage disposal in the kitchen sink but food gets crammed down there anyways.  He said he keeps putting the little metal drains in that are meant to catch bits of food but his roommates take them out.  He's about fed up.  And while he was on his rant about boys and their leve…

A Witness

I was expecting just another run of the mill night at the gym last night.  The kind where the 'meat heads' stay at their end of the gym grunting and groaning to sound strong and I would claim a little corner in the room where the Yogi's hang out and Plank, and there I would Spin on a bike for a few miles, do some rowing, a little TRX and finish up with some free weights.

Last night though, I actually decided to do an easier workout and took an inclined walk on the treadmill.  There were no meat heads in far end of the gym.  No one really at the gym at all.  For the longest time, I kept pace with an old guy on a bike behind me.

But then, a man and his son came in.  I knew them.  I knew them well but they don't know just how well I know them.  They have a son who passed away from Cystic Fibrosis a little while ago, he would have been Spencer's age now.  They have a younger son who also has CF.  I knew his wife and mother in law back when my kids were being diagnosed.…